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National Health Organizations:
American
Cancer Society:
A nationwide, community-based voluntary health organization
dedicated to eliminating cancer as a major health problem
by preventing cancer, saving lives and diminishing suffering
through research, education, advocacy, and service.
American
Heart Association: Committed
to reducing disability and death from cardiovascular diseases
and stroke. Their web site is large containing thousands of
pages and many links.
American
Liver Foundation:
The American Liver Foundation is the only national, voluntary
non-profit health agency dedicated to preventing, treating
and curing hepatitis and all liver diseases through research,
education and support groups.
American Lung Association:
ALAs mission is to proven disease and promote lung health
with a nationwide priority on asthma. The American Lung Association
has been fighting lung disease for more than 90 years, providing
programs of education, community service, advocacy and research.
Growth
House: Guide to Grief and Bereavement provides
this award-winning portal as your international gateway to
resources for life-threatening illness and end of life care.
Our primary mission is to improve the quality of compassionate
care for people who are dying through public education and
global professional collaboration.
GriefNet.org
is an Internet community of persons dealing with grief, death,
and major loss. We have almost 60 e-mail support groups and
two web sites. Our integrated approach to on-line grief support
provides help to people working through loss and grief issues
of many kinds. Our companion site, KIDSAID, provides a safe
environment for kids and their parents to find information
and ask questions.
Epilepsy
Foundation: The
Epilepsy Foundation (formerly the Epilepsy Foundation of America)®
is the national organization that works for people affected
by seizures through research, education, advocacy and service.
As an organization of volunteers, they committed to the prevention
and cure of epilepsy and a positive quality of life for everyone
who lives with seizure disorders. Their current strategic
goals include broadening and strengthening of research, providing
individuals and families with easy access to reliable information,
and assuring access to appropriate medical care for those
affected by seizures.
Huntingtons Disease
Society of America: Texas Affiliate Site
The
Leukemia & Lymphoma Society:
A voluntary nonprofit health organization dedicated
to curing leukemia and its related cancers (lymphoma, multiple
myeloma and Hodgkins disease) and to improve the quality
of life of patients and their families.
Lupus
Foundation of America:
The mission of the Lupus Foundation of America is to: Improve
the quality of life of people with lupus, their family and
friends through detection of the disease alleviation of suffering,
and eradication of lupus through research.
Mesothelioma
Web For nearly a decade, Mesothelioma Web
has been one of the most comprehensive sites on mesothelioma,
providing facts about palliative care, nutrition, and chemotherapy,
as well as information on clinical trials.
Mesothelioma
& Asbestos Awareness Center: The Mesothelioma
and Asbestos Awareness Center, is a trusted Internet resource
for information about mesothelioma cancer. Our website is
accredited by the Health On The Net Foundation as a trustworthy
and reliable source of medical information on the web, and
we are also recognized by DisabilityInfo.gov as an approved
source of information for veterans and members of the military
community. The MAA Center aims to increase awareness of mesothelioma
cancer through public outreach efforts and the distribution
of informational materials.
National
Cancer Institute: Coordinates
a national research program on cancer cause and prevention,
detection and diagnosis, and treatment. Its mission also includes
the dissemination of information about cancer to patients,
the public, and health professionals.
National
Coalition for Cancer Survivorship:
NCCS mission is to improve the quality of life of people
with all types of cancer. NCCS offers information on employment
and insurance issues, provides referrals to sources of support
and advocates on behalf of cancer survivors before Congress
and federal agencies.
National
Kidney Foundation:
Dedicated to the prevention of kidney and urinary tract diseases
and alleviating suffering from these diseases. They support
research projects and sponsor a wide variety of community
programs in treatment, service, education, and prevention.
National
Institute of Diabetes and Digestive and Kidney Diseases (NIDDK):
NIDDK conducts and supports research on many of the most serious
diseases affecting public health. The Institute supports much
of the clinical research on the diseases of internal medicine
and related subspecialty fields as well as many basic science
disciplines.
National Institute of Health:
The NIH mission is to uncover new knowledge that will lead
to better health for everyone. NIH works toward that mission
by: conducting research in its own laboratories; supporting
the research of non-Federal scientists in universities, medical
schools, hospitals, and research institutions throughout the
country and abroad; helping in the training of research investigators;
and fostering communication of biomedical information.
National
Institute of Mental Health:
The mission of the National Institute of Mental Health (NIMH)
is to diminish the burden of mental illness through research.
This public health mandate demands that we harness powerful
scientific tools to achieve better understanding, treatment
and, eventually prevention of mental illness.
National
Lymphadema Network:
The National Lymphedema Network (NLN) is an internationally
recognized non-profit organization founded in 1988 by Saskia
R.J. Thiadens, R.N. to provide education and guidance to Lymphedema
patients, health care professionals and the general public
by disseminating information on the prevention and management
of primary and secondary Lymphedema. The NLN is supported
by tax-deductible donations and is a driving force behind
the movement in the U.S. to standardize quality treatment
for Lymphedema patients nationwide. In addition, the NLN supports
research into the causes and possible alternative treatments
for this often incapacitating, long-neglected condition.
National
Organization for Rare Disorders:
NORD is the only organization of its kind--a unique federation
of more than 140 not-for-profit voluntary health organizations
serving people with rare disorders and disabilities. Thousands
of affected individuals and their families--as well as support
groups, health care and human service professionals, and advocates
for people with rare disorders and disabilities--rely on NORD's
assistance and leadership. NORD is a charity and continues
its mission through the kindness and generosity of its our
donors.
National Parkinson
Foundation: NPF has a fourfold mission: (1)
to find the cause and cure of Parkinsons disease and
other allied neurological disorders through research; (2)
to provide diagnostic and therapeutic services; (3) to improve
the quality of life of patients and caregivers, and (4) to
educate people about Parkinsons disease.
National Stroke Association:
NSA is the only national nonprofit organization dedication
all its resources to stroke, including prevention, research,
treatment and support for stroke survivors and caregivers.
Pleural
Mesothelioma Center: Part
of our mission at PleuralMesothelioma.com is to provide current,
reliable data on all topics relating to pleural mesothelioma
cancer. We are dedicated to compiling the latest and most
up-to-date information on pleural mesothelioma and offer a
number of resources to those coping with the pulmonary cancer.
Sjogrens
Syndrome Foundation: The Sjogren's Syndrome
Foundation, founded in 1983, provides patients practical information
and coping strategies that minimize the effects of Sjogren's
syndrome. In addition, the Foundation is the clearinghouse
for medical information and is the recognized national advocate
for Sjogren's syndrome.
Spina
Bifida Association of America:
The Mission of the Spina Bifida Association of America is
to promote the prevention of spina bifida and to enhance the
lives of all affected. The Association was founded in 1973
to address the specific needs of the spina bifida community
and serves as the national representative of over 70 chapters.
SBAA's efforts benefit thousands of infants, children, adults,
parents and professionals each year.
United
Cerebral Palsy Association:
For 50 years, United Cerebral Palsy (UCP) has been committed
to change and progress for persons with disabilities. The
national organization and its nationwide network of 150 affiliate
partners strive to ensure the inclusion of persons with disabilities
in every facet of society - from the web to the workplace,
from the classroom to the community. As the second largest
health charity in America, United Cerebral Palsy's mission
is to advance the independence, productivity and full citizenship
of people with cerebral palsy and other disabilities, through
our commitment to the principles of independence, inclusion
and self-determination.
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